Showing posts with label family. Show all posts
Showing posts with label family. Show all posts

Sunday, November 30, 2014

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Delight Santa And The Kids With Wonder Forge!

It's that time of year again.. letters to Santa, Black Friday, Cyber Monday, Small Business Saturday.... it all gets so confusing, when you're fighting complete strangers in public, on the floor, with your pajama pants sliding down and monstrous coffee breath, for the latest and greatest things all the little monsters in the world are begging for.

For the Monster House, though, we are clinging to our family time. We've all but boycotted the iPad for anything that isn't educational, and we're going back to basics with Santa Claus. This is where Wonder Forge comes in, with quality games that are sure to please parents, kids, and Santa alike. I have to say... the checkbook won't be offended, either. Wait. What?! Fabulous games everyone will love without having to take out a second mortgage? Win/win! You just can't go wrong!

We were delighted when the email came this year, asking us to review this season's newest games from Wonder Forge, so we could tell you how much we love them. I have to admit, though, we were right about to start (yet another) move, and everything was beginning to be packed and after I replied enthusiastically to the email, I thought to myself, "Am I NUTS?!" and then I reminded myself how much I love Wonder Forge, and I was fine again. So, let's get down to business!

I have a house full of boys, and they were in heaven when the newest Wonder Forge box arrived. Absolute male bonding heaven. Didn't matter how old they are.... they were all hyper and ready to play. First up was the Star Wars Force Grab Game. And seriously... anything Star Wars in this house is instantly awesome. Available in stores and online at Toys R Us for $14.99, the price is sure to make parents smile. This is a matching game, where you match pictures of game pieces to the matching game card. Be quick! You have to be faster than your opponent, and the competition is fierce! This game is great for dexterity, memory, and reflexes, and teaches good sportsmanship as well. Suggested ages for this game are ages 8-14. I have to say, though.. this Momma is 40, the Daddy is 52, and we had a rockin' good time, just like our 9 year old. Because of the nature of this game, if younger players want to be included, it may be necessary to adjust the rules, or even toss out the rules entirely, focusing only on matching, to accommodate them. It was pretty cut throat at the Monster House, but it was all in good fun and no game pieces were harmed in the making of this review.


Next, we reviewed Star Wars Rebel Missions. This game is rated for children ages 6-12 and retails for $16.99 at Toys R Us, in stores and online. Each player picks a profile, rolls dice, and completes tasks. Once tasks are completed, codes are entered into the Imperial Timer, but some of them are decoys.  I have to admit, this game was rather confusing at first, and the Imperial Timer was very distracting. It was difficult to distinguish between "good" code chimes and "decoy" code chimes at times, and the music that plays on the timer throughout was a bit much to take in the first few times we played. However, the game is fun once you know what you are doing, and I am sure we will play it again and again for family game night- especially now that we are all moved and will quickly be getting back in to our regular routine. (Now where did that box of games get put....?)


If you loved Yahtzee as a kid, this next game is sure to please and bring back memories, while creating new ones with your child. Star Wars Face Off Dice Game is recommended for children from 8-15 years, and is available for through Amazon for $9.99. This game includes a dice cup with the face of Darth Vader on one side and the face of Luke Skywalker on the other. It comes with 5 game dice, a lid for the dice cup so it can be transported without losing game dice, and a copy of the rules. This is portable entertainment at it's best. You will need pen and paper to keep score, as you did with the other game I mentioned. But my monsters loved being able to be the hero or the villain, bluffing, and had a great time rolling the dice and getting points. Because of the small pieces of the game, this product is not recommended for smaller children age 3 and younger, and children on the younger end of the recommended age spectrum may need help from an adult to play. This game promotes strategic thinking and imaginative play.

If  Darth Vader and Luke Skywalker don't float your monsters' boat, but Spidey does.... check this out! The Marvel version of the Face Off game! Marvel Ultimate Spider-Man Face Off is also available on Amazon for $9.99, and recommended for children ages 8-15 years. The dice cup has the face of Spider-Man on one side, and Rhino on the other, and includes cup lid, game dice, and rules. I can't help envisioning a rainy day at Summer camp, and some brilliant child yanking the Face Off games out of his pack, and suddenly turning into the hero of the tent. I'm funny that way.. vivid mental images. This game would also be wonderful for chasing away the winter storm doldrums that inevitably occur during Christmas break, forcing our monsters to stay inside.


Lastly, we got to mess around with the Marvel Avengers Assemble Slide Strike Game. This game is available online at Amazon for $9.99, and is recommended for children ages 7-15. This game encourages strategic thinking and deductive reasoning, as players conceal their true identity and slide across the battlefield for surprise attacks. With each character combination, a different outcome to the game is possible.  Whoever outlasts their opponent, wins! It just doesn't get much better than that.










If you are looking to bring your family out of the screen time stupor just like we were, games the whole family can enjoy are the perfect solution. Wonder Forge has been a favorite of the Monster House for quite a while now, and their games have held up to moves, hysterical episodes of weeping and wailing when someone didn't win, and stealth trips to school in back packs for show and tell. The quality of the Wonder Forge product line is second to none, and sure to please both giver and recipient. So.. if you're looking for something special for the boys in your life that has nothing to do with screen time, you can't go wrong by choosing Wonder Forge. They are absolutely Monster House approved, with a rating of 18 thumbs up!

I was provided with free product from Wonder Forge in exchange for honest opinions and reviews. I was not compensated monetarily for my opinion or review.




Monday, August 19, 2013

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Momma's on time out!

It would seem that I haven't had as much excitement as I'm supposed to. Today, I went to our local clinic because a wound on my foot wasn't healing after ten days, and was radiating red lines. That'll scare ya in a hurry, for sure. Turns out, though I don't have sepsis, I do have cellulitis, and have to stay quiet, foot elevated, taking antibiotics.  I'm already bored, people. It's been four and a half hours. I don't the I'm going to be able to survive multiple days of this nonsense.

Has anyone else had to deal with something like this? I thought bed rest was way waaaay behind me after having the twins. It's this wacky role reversal, where monsters tell their mother, "Lay down! I mean it! And don't get up again!" And the Momma starts whining, " but I need a drink! I need to use the bathroom! I'm hungry!" I have to say, sometimes, I'm not thirsty. I'm not hungry. I just want to get up. Because I can.

I need reminders of how to entertain myself while being grounded.. er... on time out...oh, whatever it is. It sucks. Also, I will be totally throwing the doctor's orders to the wind tomorrow night, when the twinnies will be having their Kindergarten back to school night. I will again disregard medical advice Wednesday morning, for the first day of Kindergarten. And then I promise. I promise. I will stay down, foot elevated, watching everything on DVR, gaining weight from all the eating because I'm bored.

I have to give the fam credit. The first 4 hours has gone well. Dishes were done, the kitchen is kinda clean, the rest of the house ain't bad. But I shudder to think what will happen tomorrow, when dinner isn't already in the crock pot waiting to be eaten, the dishes aren't under control, and the house looks like a tornado went through it. Actually, it will have been three little tornados. And they are talented, people. Talented.

I'll keep y'all posted. After all.. I'll be here... Finding ways to entertain myself. Maybe it's time to start writing that book everyone is insisting will win me a Pulitzer. That could work.....

Wednesday, July 17, 2013

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Chore Time Is Quick & Easy With #SwifferEffect! #rafflecopter

At the Monster House we use the "divide and conquer" method to tackle household chores. Otherwise, it would be me doing everything, and I just have to say, one person cleaning up after nine people just doesn't work out so well.

From picking up to doing dishes, to vacuuming and dusting, everyone pitches in - even the twinnies. But not everyone has 8 other family members to help get things done, like Lee and Morty, a 90 year old couple  living in New York. You can imagine how lugging around a heavy mop bucket or stretching on a rickety step stool to get the dusting done could be both difficult and dangerous for Lee, who does all the housekeeping in their home. Check out their story, and fall in love with them like I did:



Everyone has problem areas in their own home, or chores that are difficult to accomplish because of the contortions you have to do or cleaning supplies you have to heft around. Well, Swiffer has all kinds of products to help make your chore time shorter, more effective, and more enjoyable! And you'll feel better knowing that your home is really clean, and safe for your family. If you're anything lke me, and have a child or family member with allergies or sensitivities, cleanliness is a big, BIG deal. And for homes with pets and/or small children, Swiffer products are amazing for quick clean up of those pesky perpetual spills and messes.

But wait, there's more! (Lookit me all sounding like and infomercial...) One lucky Living with Logan reader living in the United States will WIN a #SwifferEffect kit ($20 value) of their very own to make cleaning faster and easier! Enter by using the super simple entries within the rafflecopter form below. Though I love love LOVE blog comments, those entries will not be valid, or counted. But always feel free drop me a comment to let me know how much you love me and the monsters. It makes me feel all gooey and get the warm fuzzies...

Remember: only entrants from the US are eligible to win. Good luck, and happy cleaning with #SwifferEffects!

a Rafflecopter giveaway


**disclaimer** I was provided with a #SwifferEffects kit in exchange for this post, including the provided video. Opinions and views stated within the body of the post are mine alone and were not compensated beyond free product. #SwifferEffect, Swiffer, and Swiffer Wet Jet are products of Proctor and Gamble, and copyrighted by same. Referenced here, for purposes of this post, with permission.

Wednesday, April 17, 2013

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The Day The Tears Showed Up

The Monster House sends love and prayers to Boston
Today, I have a post up on Special Happens, (I'll wait on ya, so you can know what I'm referencing, if you want to click over and read before you continue here.) because I specifically did not want my monsters to see it here. I don't let them watch the coverage in Boston on CNN, and I won't let them read the post I wrote for SH. Yet, as I listen to the monsterlettes play in the other room with #1, I feel the need to write a little more. I'm still... just too raw.

I'm still wondering. And I'm still reflecting. And today...today is the day the tears showed up. As I listen to the monsterlettes, I cry. I cry and I ache for the family that lost their son. I ache for the families that lost their daughters. I have vivid video in my head of the mother, sobbing as she tried to have a press conference, trying to tell the world about her daughter. And the only thing she said that I can remember with clarity is, "This doesn't make any sense!"

She said this through sobs that wracked her body, the anguish apparent, her soul screaming because her baby was taken from her with the type of violence that no one understands. And the tears keep coming.

I'm just a small town Momma with a mouth way too big for my own good. And that's okay. But the truth remains. I am scared for my monsters. I am terrified to know that my monsters are growing up in a world  where children are shot and killed at school, and bombs go off at a family event. I am horrified that I am having to create explanations that my little monsters will understand, for things that even adults don't understand.

Early yesterday morning, by accident, #5 saw coverage of a bomb dog working. He wanted to know what was going on. I had to think fast. So I did. "Well! Did you know that even dogs are superheroes sometimes? There are special dogs with super powers that work with policemen and firemen and other heroes for our country, and they can actually *smell*  bombs or drugs or other bad things and show their human partners where to find the bad stuff! How cool is that! So, that dog you see? He's showing people how he does his job!" #5 was properly awed and half whispered, "Cooooool!"

And I hated every minute of it.  I had to explain a bomb dog to my 7 year old. My seven. year. old. I could go into the inevitable comparisons now, with the "when I was 7, I was only traumatized by the fact that my cousins had all the Strawberry Shortcake figures and I had none!". But I won't. Because the fact of the matter is.. there is no comparison.

I don't know how to deal with this. I just don't. Give me an autism meltdown. Give me a sensory overload. Give me an allergic reaction. Give me a significantly overtired 4 year old that wants to eat ice cream for dinner. Give me a poop-splosion. Give me...anything... instead of having to explain what a bomb dog is to my seven year old son. Granted, he thought this was some nifty televised show and tell.  But that's not the point.

There was another 7 year old. He put it better in four words than I can in four thousand. "No more hurting people". And that's all that needs to be said, though the tears are flowing again. Now, we just need everyone to.... listen to the four words and take them to heart.

Saturday, February 9, 2013

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Sacred Family Saturday!


Okay, people. See that thing up there ^^ in the big bold print? Click it already!
Seriously, click it! This is what we're going to screw up slave over attempt today! We say we're going to have a Calvin and Hobbes front yard every year, and never manage it. Even if I have to steal other peoples' snow, we WILL have Calvin and Hobbes snowmen. We WILL!!

Snow Day! image by d10watch.blogspot.com via Google images
Calvin and Hobbes walking by movie-posters.fedio.net via Google images
Prophets of doom by onceuponageek.livejournal.com via google images

Friday, February 8, 2013

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Momma's Hit the Wall

I have hit the wall. And hit it and hit it and hit it, and recovery is not going well. I really am past the point where I can back up and regroup. There is so much going on, all the time, and I just don't have the elasticity anymore. This Momma is having a little moment.

You know how people say, "I don't know how you do it!"? Well, I want to grab their faces in both hands, and say, "I don't know, either! Please find a new role model. Please. I beg you." I am cranky. I am sad.. a lot. I cry more now than I ever have in my life. Spare me the insta-diagnosis of depression. Little pills won't fix the trouble my #5 has in school, the freakish massive allergic reactions Logan has been having even while on meds, the perpetual anger and drama with my teens, and a multitude of other things pertaining to my family that I don't know how to deal with.

Here's the thing: I'm no different than anyone else. Certainly I'm no different than any other parent of special needs children. I'm no different than any other mother of a large family. The problem is, I forget. When I see other mothers, other families, out in public, I forget that we're out in public. I see well mannered children, smiling mothers, clean cars, creased khakis, combed hair. And I wonder, "Why? What is wrong with me, that I can't be like that and do all that, too? Why?! Why am I not Donna Reed?!?!"

Ok. Let's take a breath here. Donna Reed? Really? I want to be Donna Reed, and wear high heels while vacuuming, have facial muscle cramps from smiling all the time, remove an earring to talk on the phone, and apply makeup and style my hair as though I'd just walked out of the salon by no later than 5am? That's what I want? Don't let's be silly now.... I am far, far too in love with my yoga pants and hair clips to be able to embrace that nonsense!

But it's easy to feel inferior, inadequate, and ineffective. It's soooo easy to walk around feeling like I'm just spinning my wheels in this rut I've dug for myself. What's that line from Pretty Woman? "The bad stuff is easier to believe." And there's that one other issue; I feel like a hypocrite.

I have a blog (obviously). I write on this blog. I talk about my special needs son. And all the monsters. But, I created this blog specifically to find and share resources that would be helpful to other families with special needs kids. Here's the problem. Logan is doing great now. I mean, he's doing really, really great. And I feel like a hypocrite.

Now, in my rational mind, I know that he isn't "cured" (because there is no such thing). And I know that he still has struggles. And I know that his medical issues will never, ever go away. But it's hard to know all that in the Momma part of my mind, while sitting in a meeting discussing test results with the school, and having them tell me that he no longer qualifies for any services because clearly, none of his "issues" are affecting his ability to learn. I struggle with this every day. Am I a hypocrite? Is this all some wonky, ongoing bad dream? Are Logan's PDD, SPD, seizures, fine motor struggles, and allergies really figments of my imagination, as the Daddy insists? Realistically, no. They are not figments of my imagination. But I second guess myself every. single. day.

I have hit the wall. So where do I go from here? Online support is amazing. I love knowing that I'm not the only one. But I have to tell ya... I'd give about anything at this point for a hen party, friendly voice, some good news, a night off. Something.


hitting the wall by onsconnect.org via the google images
donna reed and fam by dvdtalk.com via the google images
confused woman by nannanormasgranddaughters.blogspot.com

Tuesday, October 23, 2012

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Finding Myself

The last few months have thrown me for a loop. There are so many new things going on, that I feel I can't keep up. I don't know how to define myself. I am the mother of seven children. This is not news. However, this year, I am the mother of a high school graduate, two high school students, a middle school student, an elementary school student, and two preschool students. Wow. Seeing that in print is kinda scary.

 I am the chef, chauffeur, housekeeper,  laundress,  advocate, postal worker, Momma Bear as needed,  teachers' aide for any number of teachers, a contributor for an online magazine, a book reviewer, college course counselor, motivational speaker for the monsters and the Daddy, comedienne, disciplinarian, and administrative assistant to the fam. But nowhere, in the description of all those jobs, does it tell me who *I* am. Me. Caryn. The..... person. And that's where I'm stuck.

I don't mean this in some deep, spiritual, religious way. I mean, I can't even tell someone what I like. I don't know what my favorite flavor, color, scent, book... whatever... is.  I really don't.  I don't know if I'm "good enough" to keep writing. I don't know if I have any extraordinary talents that define me. I just don't know.. me. And I have to tell ya; it's a little difficult to keep things together on the outside when the inside is so conflicted.

So, I'll apologize now for using my blog as a therapist for the day, while I attempt to muddle through.

I know there are things that have to be done because it's part of being the Momma and a responsible adult, like laundry, dishes, grocery shopping, showers, meetings, doctor's appointments. I know there are things that get done because it's in the best interest of my child(ren) like therapy, homework, diet changes because of allergies. There are things that get done because it makes my monsters smile, like going to get pumpkins from the "Punkin House" and jumping in leaf piles. And I'm all about having happy monsters.

But... again. That gets me no closer to finding out who *I* am. So here's what I have figured out. I am a rockin' awesome baker. This is not bragging. This is a fact. I'm sorry.. I know it sounds shallow, but it's true. If you are my friend on facebook, I apologize for the quantity of mouth watering pictures of baked goods on my timeline. But there's a little part of me that feels like I've accomplished greatness when I take something glorious out of the oven. And also? I feel calm when I bake. I feel like everything is okay, and whatever things are stressing me out at the time can be overcome. The more intricate the recipe, the more stressed out I am. Thus, the caramel apple cinnamon rolls that appeared on my timeline last week. Therapy through flour and wire whisk. That's my thing. Does baking "define" me?

If so, that's okay. That's good enough. I am Caryn. The mighty baker of many sinfully delicious things made from scratch, staged, and then cruelly posted on facebook for all my friends and family to drool over. We call that food porn. And I'm good at it!

I lust over KitchenAid mixers in catalogs (because I don't have a mixer at all, and I do everything literally by hand). I drool over cute little muffin tins, bundt pans, and painfully expensive pure vanilla. If I could have anything I wanted, I would have a Bosch mixer/blender/food processor. And.. let's be honest.. I'd also be able to eat anything I make without gaining an ounce. It's kinda sad, really.. because I'm happiest when I'm creaming together butter and sugar, or making cookies with the twinnies. I feel fulfilled when the fam rolls their eyes in flavor nirvana and asks for more. I am absolutely giddy when people beg me to stop posting food pics because their keyboard/monitor/phone is beginning to malfunction , because they have drooled all over it a few too many times.

Yes, yes. You know I'll share some of these cruel pics from my timeline with you. After all.. I kind of HAVE to now, don't I? Just be glad I don't text y'all. You'd block me and my pic messages. Seriously.

Ok. Therapy over. Time to drool.

Fresh Strawberry pie and cream
Ham and Cheese Potato soup
Chocolate Double Shot flourless
cake with vanilla bean ice cream
and fresh raspberry sauce
Peach Cobbler with vanilla bean ice cream
5 Grain Bread
Gingerbread/Egg Nog bread pudding

Who Am I? via the Google, by hupandsteph.com
Leaf pile play belongs to the Momma
Bosch mixer/food processor via the Google, by boschmixers.com
Food porn by the Momma

Saturday, October 6, 2012

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Welcome, Fall!

One of the best things I have ever done without realizing that what a good thing it was going to turn out to be, is to sign up for Education.com 's weekly newsletter by email. Y'all may know that I just love love LOVE to spend time and do things with my monsters, such as simple crafts (because, darn it, I am not a crafter at heart), baking, and simple science experiments (because, darn it, I am also not a scientist at heart. But I really get into Mythbusters, every episode of Magic School Bus ever made, and How It's Made. Does that count?).

When I opened this week's newsletter, I was thrilled with all the fun Autumn projects listed there and had to sing praises. From making leaf pattern prints for Pre-k aged monsters, to making pumpkin pasta (yummmm!!) for high school aged monsters, and more crafts and experiments for every age in between, this site has got it going on! This takes all the headache out of figuring out what fun things I can do with the monsters each weekend. And I'm all for less headache!

Exploring all the changes in nature as the weather turns is one of my favorite things to do with the monsters, no matter what the season. The air feels almost electric with change and anticipation of things to come. A day spent making cookies, jumping into leaf piles, visiting a pumpkin patch to choose the perfect one for a jack o'lantern, or playing with gingerbread scented homemade playdough is heaven this time of year. Reading books while snuggled up together in a quilt, or watching "It's The Great Pumpkin, Charlie Brown!" makes me smile.

Grab the chance to make memories with your monsters, and have a lot of fun doing it! Happy Saturday, y'all!
Image of tree and leaves by firehow.com. It's the Great Pumpkin, Charlie Brown! clip via youtube.com

This post was unsolicited, and uncompensated, and is purely my own view and opinion. Views and opinions of others may differ.


Monday, August 13, 2012

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Can You Feel The Love Tonight?

This past weekend, my monsters and I got to do something so totally amazing, I had to share it here. Now, in order to tell this very special story as accurately as possible, I am relying heavily on texts and facebook posts I made throughout the weekend. And, if you're really, really good... I'll even throw in a couple of pictures. I'm all about the bribery for good behavior. You're gonna like this one. You really are.

Here we go! This past Friday evening, this is what the sky looked like in the distance behind my house. It's wild fire season here in Southern Utah, and we've had several lightning fires in the last two weeks. By late Friday night, I could stand on my back step and see the flames. We are not, and were not in danger, but there's something rather unsettling about being able to see a long line of fire without binoculars from your back yard.

By noon on Saturday, the monsters informed me that they had seen fire crews pitching tents on the lawn of the high school. So, I talked to my monsters about what exactly it is that fire fighters do, why we needed so many of them, and why there were crews coming from all over creation to help. What an "incident site" is, and why they had to have neon orange road signs to direct out of town crews to it. (Very special thanks to one fire fighter in particular, who educated me about all this stuff many moons ago, and continues to amaze me with his experiences.)

We talked for quite a while, and during this talk, the word "hero" came up rather frequently. Not from me, but from my monsters. We had been watching helicopters with buckets, small planes, and large tanker planes flying back and forth all morning. We saw many, many trucks pass by. We saw buses full of fire fighters. And we talked about it all. And we made a decision.

Here are all these people: fire fighters, incident site staff, medical support, pilots, bus drivers, fuel crews, backhoe operators... all these many, many people working hard to keep us safe. They are away from home, away from their families... helping us. And we were humbled. So, because they were (and still are) working so hard for us, we needed to say thank you. But we didn't want to just walk into a very busy restricted area. That would be rude. And disruptive. So, we thought it might just be better if we made a few treats to show our appreciation, and dropped them off as quickly as possible so as not to be a distraction.

I went to ask permission first, because I had no idea if  homemade treats were even allowed. It's allowed. This is not public school, and they don't care if things are individually wrapped! Hooray! They had NO idea what they were in for, by granting permission! I got a rough number to work with from the command trailer because we wanted to make sure everyone got a treat, and then...we went on a little shopping trip. The baking and making started after dinner. All the older monsters pitched in once the twinnies were in bed, but they all went to bed long before midnight, exhausted and covered in sugar. I finished the last batch of cookies, packaged everything up, and had a clean kitchen a little after one in the morning. I had been told that all the crews gathered at 7am, before going out to the fire. So that was our goal. I was so excited, I couldn't sleep until after 4am.

Sunday morning, bright and early, I got up, woke the monsters (only two managed to stumble out of bed, grab the cupcakes and head to the car, still in pajamas and with bed head) and we headed out. Because we live so close to the high school, it only took us about a minute to get there, and another minute to get out of the car with the goodies. We saw a couple guys standing around and asked where we should take the treats (I had nine paper plates stacked in my hands.. they reached from mid thigh to the top of my head, and #1 and #3 each had two boxes of cupcakes). They directed us to the trailer once again, so off we went.. and as we walked through the parking lot, we noticed a swarm of people gathering behind and around us.

When we reached the trailer, we asked again where we should put the treats. And then it happened. One fire fighter came up to #3 and asked if the treats were for them. When he said yes, the man asked his crew leader if he could take a box of cupcakes on the bus for the crew. And everything went quiet. The crew leader looked up and said, "Yes! They are from *insert reverent pause* The Community!"  I swear to you that you could hear the capital letters at the beginning of his words.

And about that time, everyone exhaled and became happy. A woman came out of the trailer and told some people to get a table, paper and a marker so they (meaning me and the monsters) can write a note, tape to attach aforementioned note to aforementioned table.... and suddenly.. people were falling all over themselves to get it done. It was like they had found the Holy Grail.

These brave, tired fire fighters looked like kids at Christmas.. with shining eyes and everything, and we felt like Santa Claus. And every time one of them said thank you, my incredible monsters replied immediately, "No. Thank YOU for keeping us safe and working so hard." And so very many of our heroes said thank you. I was a proud, proud Momma.

The feeling in that parking lot, with all these people surrounding us, became festive. One man showed my #3 the map of the fire, how big it was, and the location, and "talked shop" with him. He felt very grown up.

I regret that it all happened so fast. I regret that I didn't get to take a picture. But our intent was that we not disrupt any more than necessary, so we quickly said goodbye. I was brought to tears by the humility of our real life heroes. I was, and still am, so very thankful I got to experience this. I will never forget it. And neither will #1 or #3.

To all fire fighter and support crews here and everywhere: Thank you. We did nothing extraordinary by bringing treats. But you do extraordinary things every day. Thank you. We will never forget you, and your response to us.

Thursday, June 14, 2012

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Watching Miracles

Yesterday, I spent most of my time on facebook watching miracles happen. I am so overcome with emotion because of this, I simply had to share. No matter how many times I will be allowed to see something like this, the wonder and the awe will never, ever go away. Ever.

Here's how it went down. Yesterday morning. I went to a particular fb group of ASD parents I belong to, to beg for help on behalf of the St. Aubin family, for a mail flurry. Don't know what I'm talking about? Haven't got the foggiest? I can help you out with that. Click here for the skinny. (No, I do not need to know how the previous sentence shows my age. Let's move on.) Okay. Is everyone up to date now? Good. This is the fun part!

Suddenly, all over the facebook was this status update, that people copied and pasted on their personal pages, their blog pages, just... everywhere! It showed up on well known blogger pages. It showed up on pages of people I have never met, but who wanted to help. It generated a LOT of interest. And seriously? The weather report for the Post Office in Littleton, Colorado is now "100% chance of flurries" until further notice. Dress accordingly, postal workers! Also... put in for some overtime. Because love for the St.Aubin family is going to begin to manifest itself through the US Mail. Eat yer Wheaties. Get some rest this weekend. I'm just sayin'.

While I was all giddy and entertained watching this happen, other things started to happen, too! Bloggers started posting for the St.Aubin family. Check out this awesome post over at Seven Yuckmouths and Autism! And it doesn't stop there!

An artist (who was a childhood friend of mine) saw my post on my personal fb wall. Sorry, Jackson's Momma.. you were excluded from seeing that post, on purpose. Some things in life should be surprises!! Because she has epilepsy herself, Jackson's story touched her deeply. She is creating a triple canvas masterpiece custom made for Jackson, with a train and a rainbow. She is enormously talented, and I can only imagine the love and good wishes that will be put into such a gift with each stroke of the brush. The image above is the rough sketch. This is a rough sketch?!?! I'm intimidated by people who can successfully draw stick figures, and this is way more better than a stick figure. Can't WAIT to see the finished product on canvas!

Y'all have really come through.. again.. but I expected nothing less from all the amazing people we call family within our special needs community. From the bottom of my heart, thank you. Thank you for coming together to show the St. Aubin family how very much we all care about them. I know for a fact that they are touched beyond measure. But don't stop now!!! We're just getting started!

If YOU would like to help with the mail flurry by sending a card, picture, care package, or letter, or have other ideas for ways to help, please email me at frazzledmomma@livingwithlogan.com, connect with me on facebook, or tweet me! I'll be happy to connect with you.
Miracles quote by Google images, via everyday-miracles.net
Train image via Amber Tilley

Sunday, June 10, 2012

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We Are Our Own Worst Enemy

I have a lot of phone calls late at night with other special needs parents in various states. They are friends of mine, and we talk frequently, and at some length. We talk about everything under the sun. We see each other online in various support groups, on facebook, and on twitter. Most of us are bloggers. Some are not. But the thing that brought us together in the first place was the fact that we are all parents of at least one special needs child. It doesn't matter what the diagnosis for our children is. We are all doing the "long, hard journey without a map" thing.

We laugh together. We cry together. We curse at the powers that be. We rant about lack of services, clueless school districts/teachers/principals/doctors/therapists/neighbors. We rejoice when one of our children makes progress. We send birthday greetings, and  "I'm rapidly losing my mind!" texts. We know that it may take hours for a text to get a response, and we understand. We are family, though we may not have ever met in person, we are family. We understand, and we empathize. Because we are all traveling without a map. I am no different than many,many MANY special needs parents who seek online support and understanding and reassurance.

But invariably there is drama. One person loves Autism Speaks, another foams at the mouth if Autism Speaks is mentioned even in passing. Someone supports a fraudulent iPads for Special Needs Kids organization, many others despise the lies and the schemes. The drama grows to a point at which the closeness is lost. The friendship is gone. It doesn't matter anymore that the parents met in the first place because of their children. It doesn't matter that the goals are the same, though the methods are not.

Suddenly, the support and friendship and reassurance of yesterday becomes today's sworn enemy. That begs the question, "Why can't we all just get along?" Regardless of whether my child's autism is genetic or a vaccine injury, we both have children with autism. Regardless of which organizations you support and which you publicly shun, we're all in this together.. doing the very best we know how to get our kids what they need.

People are shuttling back and forth between support groups, joining this one, banning that one, tweeting threats, taking screen shots, is it all worth it? In some cases, where crimes are committed, yes. It's worth it. But in general, if it's just a case of disagreement between parents.. WHY? What is the point? Why??? Seriously. I need to know. What is the purpose? It's getting ridiculous, and it's ruining the sense of community.
video via Youtube. Because you know, that wasn't obvious at all.

Thursday, June 7, 2012

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Jackson's Journey

Good morning, Monster House addicts! I have updates for you about Jackson St. Aubin and his upcoming hemispherectomy surgery. If you have no idea what I'm talking about, read all about it here. Okay. Now that everyone's on the same page, here are the updates! Jackson's surgery date has been set for June 27 at 830am. That's not very far away, and there is a lot of preparation to be done. Because so many wonderful, fabulous, awesome, and incredible people love the St. Aubin family (what's not to love? They're phenomenal!) and have expressed their desire to stay in the loop as time goes on, Gina has been working with her web designer fast and furious to get a site up and running with all the pertinent info. This site will remain active throughout  preparation, during surgery, throughout the recovery process, and beyond. You can take a peek at their brand new site, and sign up for email updates to Jackson's Journey by clicking here. Gina will be updating throughout, so you'll have access to all the most current happenings.

In the right sidebar of the Jackson's Journey site, there are ways to help the family. If you are in the Denver area, a Meal Train calendar has been established. However, if you are NOT in Denver, but still want to provide a dinner, a gas card, or send a care package, you can do that too. A page of resources for gas cards, restaurant gift cards, likes of the children in the family, and other important info has been attached to the site and will be updated with Jackson's room number in the hospital when he is out of ICU.

Having the privilege of being Gina's good friend, I get to talk to her late at night about all kinds of things when we're both online and our little monsters are sleeping. During one of these calls, I asked her what she needed most from me~ really, what she needed most from anyone. I loved her two part response.

Firstly, and most importantly, they need a mail flurry. By that, she means they need a flurry of cards and letters for Jackson. Drawings in crayon from other children. Cards with brightly colored pictures. Links to YouTube videos of people wishing Jackson well. There's a reason for this. For the first while after surgery, Jackson will be allowed no sensory stimulation at all. His room will be dimly lit, and there will be no colors or loud sounds. This is necessary for the first little while. Once he is able to be moved to a room out of ICU, his brain will NEED colors, and words, and pictures. Already Gina, being the amazing mother she is, is making videos of his favorite things in preparation of this need. I think we, as the St.Aubin's online family, need to step up to make sure his hospital room is wallpapered in cards, drawings, pictures, and letters. Think of this as therapy for his brain. Because that's really what it is. Gina would love to see mail from all over the country, and even from all over the world, to share with Jackson as he recovers.  Here's where the mail flurry should be sent:
Cards/care packages/ letters:
Special Happens / St. Aubin Family
 9609 S. University Blvd., #630303
 Littleton, CO 80163

Secondly, the family has decided this is the time for a Fun Raiser. In the days before surgery, they are going to have fun doing all the things Jackson loves, such as taking day trips and riding trains... and things the family loves to do as a whole. So, we're fundraising for their Fun Raiser. Donations are being collected through rally.org and can be made by visiting this link. Donations made to this fund will be used for the Fun Raiser, as well as other expenses. This is what is known as a "disposable dollars" fund for things such as gas for trips to the hospital, housecleaning services, babysitting fees for the other 2 amazingly gorgeous St.Aubin monsters, yard care, meals at the hospital, etc.... all those expenses that you never really think about, but which add up fast. By donating, we're making sure that the focus is where it should be ~ on family time prior to surgery, then Jackson's surgery and recovery and proper care for his siblings during that time~ rather than on worry about all the little things that need done and paid for.

If you are a blogger, and would like to help pass the word about the St. Aubins, surgery, the Fun Raiser or  the mail flurry, please DO!! And, we have a nifty neat-o button for you to put on your site just for that purpose! Check it out!


Jackson's Journey

Okay. I know this is a lot of information all in one place, and I have a couple more things, but I promise to make it as painless as possible. To connect online, visit Jackson's Journey on facebook , connect on twitter @GinaStAubin, or email JacksonsJourney@SpecialHappens.com

Spread the love, addicts! Spread it far and wide! We have 19 Fun Raising days left. Let's raise the roof! I would absolutely be on cloud nine if there were sacks of mail and piles of YouTube links waiting for Jackson before his surgery. The clock starts now. As of today, we have 20 days until surgery. Let's get this done. And let's do it in the way we have shown before. Big, and loud, and POWERFUL!! 

Saturday, May 19, 2012

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It's Time For The Family Reunion

This week, I heard from my dear friend. A friend that I would do anything for. A friend that I have laughed with, and cried with. A friend who has never failed to be a source of support for me and so many others. Who selflessly, tirelessly does so much for so many, and never asks for a thing in return. She is the mother of a special needs child. And she is my inspiration.

We have had long conversations, and short ones. Talked about kids, men, and injustices of life (most of which involve the cleaning up of poop). We have cheered for each others' children and worked together. She is my "Go-to" person when I need sound advice from an advocate's stand point. You all have seen her work here. You have seen my work on her site. You may know her well, or not at all. She is the phenomenally talented Gina St. Aubin of Special Happens.

Because her writing is second to none, I'm going to let her tell the story, and then go on from there. She is writing about her son, J. And it is ONLY with her permission that I am publishing this very sensitive, very raw, very real excerpt. Read on:


We’ve had a series of appointments in the last two weeks.  PET Scan and MRI (both under anesthesia), NeuroPsych, 2 days of infusions, a LONG appointment meeting the Rehab doc, NeuroPsych again, one of two neurosurgeons and our epileptologist, and the then second neurosurgeon today.  They have had what they call a “conference” and presented J, his EEGs, all testing etc to 20+ doctors, therapists, social workers and more tonight.  
Honestly within the last 2 days, we have been hit with a couple of bombshells that have literally knocked us back and taken the basis of the genesis of all of J’s diagnosis and turned it upside down.  We are taking some time to absorb it all, so if we don’t respond, please don’t think us unappreciative… we are just… overwhelmed to a new level with the enormity of decisions we have to make. 
To make it simple (which it's not), here’s the gist:
It has been said, since J was 9 months old that he had an intrauterine stroke.  It was explained to us by a neurologist that he could see that it was within the 1st trimester because of the development of J’s brain on the left side.  It was explained that it was the left frontal lobe only.
It’s not.
 The MRI shows that the ENTIRE left hemisphere of J’s brain is malformed.  All of it.  There is absolutely NO indication of an intrauterine stroke.  It also did not happen at birth.  It looks to be the true example of “sometimes these things happen”.  And, quite honestly, a miracle that he's here...and functioning as well as he is.
The EEGs have been showing his seizure activity as focused / limited to one area.  That’s not so either.  It’s actually the entire left hemisphere that’s not only malformed but is also constantly seizing.
 One significance of this, besides the misdiagnosis, is that *that* misdiagnosis has lead us and J down a wasteful road that NO medication...NO medication would have EVER touched the epilepsy because of the malformation.  He would have had this subclinical epilepsy since a young age...likely since the age we starting asking doctors why he wasn’t sleeping… 1.5 - 2 years of age.  
Since NO medication will have (or will ever) work because he has a malformation of the entire hemisphere, surgery would have been his only option - this whole time.
Herein, the surgery….the surgery is necessary to stop the left side from it’s constant seizure status.  100% of his days and nights are in subclinical seizures.  Eventually, the one medication that’s holding them to a subclinical level will wear out … again because NO medication will stop it … and J will then be in a full blow constant outward (clinical) seizure.  That - again - no medication can stop
All the activity that this left hemisphere is doing is also keeping the right side (presumably healthy) from functioning properly.  The longer the left hemisphere is there being ‘busy’, the higher the chance the right hemisphere has of taking on the subclinical or clinical seizure activity.  In other words, in order to keep the right side healthy, we have to stop the left side.
Which means…
The brain surgery that we once thought was so serious has become even more serious.  Where we thought we were having to take a sliver of an already unhealthy (but small) section of a hemisphere out…
We have to disconnect the entire left hemisphere from the right.  
That means, a piece of his left hemisphere would be removed in order to reach the central connections (center) of his brain where they would disconnect the two halves.  It’s called a Hemispherectomy.
He has been approved for this operation this evening.  However, the conference doctors have requested that the entire team sit down with us one more time and really go over the pros and cons.
Obviously there are a number of side effects and possibilities.  These are all being weighed out.  In the end, the choice we are faced with is to watch him deteriorate slowly, eventually needing this brain surgery or a brain surgery that also involves removing a portion of the right side too… or give him a chance.
It’s late tonight. We’re exhausted.  I’ll email the rest...but basically, we will be looking at 3 days to 1 week in ICU.  2-4 weeks of intensive rehab IN the hospital Monday - Saturday, then another 6-8 weeks of intensive rehab at home.  He will be lethargic.  He will be unable (and likely un-wanting) to swim, jump, run, play…).
We won’t have a date until after we speak with the team again, which is thought to be able to happen early next week.
Please rest assured that this decision is not light, but the heaviest, most difficult, "unfair" decision we can make.  This has been reviewed heavily by the ONLY 6 pediatric epileptologists in our state, a number of neurologists, a neuroradiologist, all neuro-whatevers, therapists, 2 neurosurgeons... this is not a fast decision.  
J is now 9 years old. And he will be undergoing major brain surgery very soon. This summer, in fact, though the exact date is unsure. It goes without saying that you will be reading a lot more about J in the weeks to come. Since this email (written 5/15) was sent, many have expressed a desire to help the St. Aubin family before, during, and after the surgery takes place.

This is something that will affect their entire family. And here's what I know. I know that the special needs community via blogs and social media is strong. I know that this community is a family just as much as any family is. And it's time for a family reunion. It's time to band together again. To show our strength, our support, our love and friendship. It is our time to shine. We've had a nice hiatus, now it's time to get back to work. 

We have done this before. We have really made a difference. So there's no question about whether we have the means necessary to be successful. We all remember Deeds. We all fell in love with him and his family. This time, it's even more important. There are things that will become necessary while J is in the hospital. Things that will have to be taken care of that Gina and her husband will be unable to accomplish, because they are taking care of their child. That's where we come in.

Over the next week as plans take shape, I will post and ask for help. Other bloggers will post and ask for help. I will ask every blogger I know to consider posting about the St. Aubin family's story on their sites. I will ask their readers, my readers, and Gina's readers to leave messages of comfort and strength. I will ask for... everything. Because it. is. necessary. This family needs the support we have to offer. And I won't apologize for asking. 

At Gina's request and mine... please keep them in your prayers. Whatever your religion, whatever your opinion, they need peace. They need comfort. If you have ideas, or questions about efforts to be made on behalf of the St.Aubins, please don't hesitate to toss me an email at frazzledmomma@livingwithlogan.com.

Images in this post from the Google

Saturday, April 21, 2012

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Sacred Family Saturday!

What fun things does your family have scheduled today? For the Monster house, it's just:

Change the oil and check the fluids on the Mom Enforcement vehicle

and some house cleaning
Happy Saturday, everyone!

Friday, April 20, 2012

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One On One

Every so often, life presents me with an impromptu opportunity to spend one on one time with the monsters. Today, it's with #6. Logan had a very rough night last night, and is sleeping in. All the older monsters are in school, the Daddy is at work, and the house is quiet. It's a precious gift to me, to spend time with each of the monsters individually, without outside interruptions, not needing to cut our time short to break up a fight, make dinner, clean up a mess, or answer the door or phone.

I love being able to snuggle, have silly little whispered conversations that are just for us, eat breakfast, read stories, maybe watch an episode of Team Umizoomi, and generally just re-acquaint ourselves with each other. We play, we talk, we act nine kinds of silly because we can. This is one of the jewels of life.

We have a large family, as you know, and it's vital to me to be able to spend this kind of time with each of my children. They each need to know that they have a special place in our family, not just as a number, but as themselves.

There are times when things are just crazy, and when I gather up the monsters I feel like I'm running a clown show for a three ring circus. Hey.. there's a thought.... just kidding, just kidding. But at the end of the day, when it's all said and done, these are my monsters, each with their own personality, their own opinions, needs, and wants. Their own little set of ideas. I have the greatest experiences during these one on one times. Invariably, I will learn something new about the child I'm with that I had never realized before. And though that closeness appears diminished when we're all back together again with the hustle and bustle and general chaos, there's little smiles or a quick wink. There's that extra tight hug or that extra effort made during chores. Money can't buy this kind of awesome.

Happy Friday, y'all! Have a FABULOUS weekend. Make a lemonade stand with the monsters or something. What? It worked in the '40s...
Images in this post from the Google Images.

Monday, February 6, 2012

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There Is No "I" In Wii.

The Monster House has become afflicted with the Wii addiction. I'm told that this is a serious condition, one in which withdrawals can result if quitting is not handled carefully.  I have to tell ya.. I'm leaning toward the "Cold Turkey" version for my monsters.

For the last 17 years of motherhood, I have avoided all things video game in my home. I didn't want it, they didn't need it. I wanted to have children that knew the meaning of fresh air, sunshine, playing outside with friends, and mud pies. Snowmen, forts, and bike riding. Bicycles, hula hoops, and pogo sticks. Jump rope, hopscotch, and ice blocking in the summer. In short, I had no desire to allow my children to become zombified, glazed over lumps of humanity; faces devoid of expression while their little thumbs danced over a game remote, with no motivation to get up and socialize with their peers in person.

And then, Christmas before last, one of the monsters' aunts thought she would boost her aunt status right up there to "Saint" with one great gift that the monsters had been salivating over... without asking for parental opinion/permission/blessing. Now. It turns out that it wasn't as bad as it could have been, because she bought them a previously owned Wii. And when we got it, it was missing the motion sensor. Gee, darn. Darn, darn, DARN. Notice my lack of real distress.

I thought we had escaped the Wii. I really did. And then, a couple of weeks ago, #1 got a package in the mail. "Better late than never!" it said. And when she opened it, there was screaming and dancing and excitement the likes of which is never seen around the Monster House, save for Christmas Morning. It was a motion sensor.

For the last two weeks, conversations in my home have been something like this:

"So-and-So, I swear to you if I have to tell you to get off the Wii and come do your chore one more time, the Wii is MINE. Mine, henceforth and forever, amen! I'm your mother. I command you."

"MOM! #3 has been playing the Wii all.day.long. and he won't let me have a turn, and Aunt Whatshername said it was for all of us! MOM! Mooooooooom! #3 isn't sharing!"

"Mom! I'm starving! What do you mean dinner was 2 hours ago? Why didn't you call me? You did? 57 times? Oh. Well, then why didn't you make me a plate and keep it warm until I was done playing the Wii?"

"MOTHER! #1 came in and turned off the Wii! She's not the boss of me! I said I would do my chore after I got to level ninety bazillion! I just made it to level 4 and she turned it off!"

My children, previously accustomed to coming home from school, getting a snack, doing homework and chore, and then meeting up with friends, are now ruled by a gaming system. And I hate it, hate it, HATE it. I hate seeing the very real distress on their faces when the console overheats and they have to wait for it to cool before they can play again. Because heaven forbid they read a book, or speak to each other in voices that don't resemble the gentle tones of a banshee.

I've read all about how Wii can help with hand/eye coordination.  I have read eleventy million arguments both pro and con. For me, I'm not willing to give up my family to a gaming system, of any kind! And so, being the mean, horrible, nasty, terrible, unrelenting, uncompassionate, cruel woman that I am, I have abducted the Wii remotes. I will be writing the ransom note later and duct taping it to the TV screen.

There is no "I" in Wii.. er, "We". WE are a family, not a gaming system. It's likely that the ransom will be met for the Wii remotes. And it's likely that  I will allow the monsters to play with the Wii again...someday. But we're going to get real comfortable with a kitchen timer, first. And, I'm not above abducting that motion sensor, either. The time has come for me to reclaim my monsters. Oh, they're gonna HATE this. There will be begging, and pleading, and promises of glitter and rainbows if I will just let them play for 15 minutes. Me? I'm comfortable with my decision.
Wii remote image from the Google

Sunday, February 5, 2012

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Screw The Chores, Let's Go To The Movies!

Yesterday, I decided that it was high time that the monsters and I had an outing. We rarely ever go out as a family (it's been months and months) and frankly, another weekend of nagging the monsters about getting the chores done was about as appealing as a triple root canal. So, about 30 minutes after I got out of bed, I called all the monsters together for some Very Important News.  "Babies," I began "we have a lot to do today. We are going to be very busy people." Not surprisingly, this announcement was met with groanings and moanings. However, I continued on bravely. "Get it together, get your breakfast, get dressed, and ready for the day. Screw the chores, let's go to the movies!"

Now, it was about this time that the monsters started to think I had been abducted by aliens at some point during the night, or had been selected to participate in a clinical trial for hallucinogenic drugs not yet approved by the FDA.

But I have to tell ya.. yesterday was AWESOME! The twinnies got to play at a McDonald's playland...a first for them. We went to the movies, another first for the twinnies. Then, we had the car washed (which is entertainment in and of itself, you know), and wrapped it all up with a trip to mega Wally world where every monster got to spend $1.07 or less on anything they wanted, while I selected a couple of therapy balls for the twinnies. We swooped through the produce section for a piece of fruit each to eat on the 40 mile drive home, and finally walked back through our front door 7 hours after we started our adventure, exhausted and exhilarated, because (the monsters are still shocked) "Mom said screw the chores!"

It was Sacred Family Saturday, people, and it just doesn't get much better than this. I mean, come on! Isn't it every child's dream to be able to have $1.07 of their very own to spend at mega Wally world? I'm such a big spender....

I was thinking about our day late last night, when I was so tired I had to calm down before I could sleep. And I came to this conclusion: I am exhausted... but it's the good kind of tired, when you know you accomplished something great, and the tiredness is proof that it was all worth it. And then.. I fell asleep, completely broke, full of the happy, and praying that no one would wake up at the crack of dawn.


Friday, February 3, 2012

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Have We Lost Our Credibility?

I have a confession. There are days when I feel like I have lost my credibility as a Special Needs Parent. So much so, in fact, that it's a big reason for why I stopped posting. It took several good friends to kick me in the butt to make me realize that what I have to say is okay.

I have been afraid to post because... Logan is doing great! He's not had a seizure in almost a year. He hasn't had an allergic reaction in a long time. He is doing phenomenally academically. We're reintroducing gluten without a hitch, though we're keeping him off casein until the end of time. And this makes me wonder if I really have anything to offer to parents of special needs children who are not doing phenomenally. Have I lost my voice? My credibility, because there has not been a trauma with Logan in recent weeks? And because of that, what can I truly say? What is there to write about? I've felt all dried up, a failure as a writer, for months now.

I have so much more to share, apart from crisis surrounding PDD, SPD, food allergies, and IEPs. But there's still that little part of me that wonders if I'm a fraud. I can write about the monsters all day long. I can talk endlessly about how laundry makes me angry. But the closeness I feel with the special needs community is near and dear to my heart. I feel a special bond with friends I have made in this community, and in some cases, love them as I love family. And I empathize. I feel their frustration when there are no answers, when there are weeks of non sleep cycles, sickness, infusions, seizures, problems with school and IEPs, lack of services... the whole shebang.

Don't get me wrong. In no way am I shouting "Logan is CURED!" from the rooftops. Partially because I don't believe autism is a disease, or that it has a "cure", and partially because I know there will be regression, because Logan doesn't retain well when routines are interrupted. I know that summer vacation will be hard on him academically, and we'll be back at square one or lower next year.


I'm NOT saying goodbye. This blog is alive and well. But I think in order to be true to myself, there will be lots more posting about all the other monsters, and life in our family. Because after all, there is a LOT of it! First and foremost, I am the Momma. Being a writer is secondary to that. So, welcome to our family (again). Brace yourselves. I may write about preteen drama queen. Or my senior in high school. Or my teenage boys that make the need for a garbage disposal obsolete. Or Logan, who insists now that his name is Mrs. Hoggenmuller. (thanks for that, Nick Jr.)

But before I go on... I need to know. Have I lost my credibility? Is that ever possible? Let me hear it, people.
Images from the google~ Specifically, the google found Mrs.Hogenmuller from nickjr.com

Wednesday, January 4, 2012

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Sounds Of A Monster House

The majority of us are diseased this week, and we have this in surround sound:


And when I'm completely worn out from coughing and caring for monsters, and ready to drop, we have something like this:


Finally, after I recover from the previous trauma, we have this:


Hope everyone one out there is staying healthy. Take your vitamins. Drink plenty of fluids. Avoid the monster house, people. It's getting kinda ugly in here...

Friday, December 30, 2011

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Ho Ho Holy Cow

We've all heard it, the statement that suicide and depression rates raise during the Holiday season. Frankly, I believed it. I've heard too many stories, and offered my shoulder too many times to think it was false. Toss in a family with a special needs child, and all the stress that comes along with trying to keep extended family happy by attending family get togethers with a child (or more than one child) in complete sensory overload in an unfamiliar place? Yep. I bought the story about suicide and depression increasing during the Holidays. But, the Mayo clinic says I'm wrong.

In December of 1995, The Des Moines Register ran an article titled "Mayo Study Shows No Link Between Holidays, Suicide" by Deborah Cushman. To paraphrase, it says a study was conducted over a 35 year period in Olmsted County, Minnesota (home of the Mayo Clinic, people!) and that there was not an increase of suicide just before, during, or after Thanksgiving, Christmas, and New Years.. or even the Fourth of July. There is not an increase on birthdays, or even three days before or after birthdays. And... that study was concluded in 1985.

In another article, in a different newspaper, a week prior to Ms.Cushman's article being published, Michael Woods published an article in the Pittsburgh Post-Gazette wherein he states :
"Evidence suggests that holiday depression is about as real as Rudolph the Red-Nosed Reindeer.....
..Experts emphasize the holidays are a stressful time..... people feel tired and stressed out.
Balancing that, however, are increased levels of emotional support from families and friends that help people cope."

Yeah. Well. I beg to differ - in my unpublished, uneducated, unstudied (at least not for 35 years), and certainly unprofessional way.  There are different circumstances for special needs families. Circumstances that include being banned from holiday gatherings, being told that it's just too bad that (insert child's name here) couldn't just be absent from the "family" gathering because it's just too hard with him/her/them there.

Circumstances that include the continued fervent belief of doctors, family and/or friends (however deluded it may be) that (insert child's name here) would be just fine if only (insert parent's name) would discipline their child better/more. Isn't it awful, the way (insert parent's name) allows (insert child's name) to dictate their every waking moment? Yeah. Awful.

So, in keeping with tradition (started last year)I'm going to do the unthinkable. I'm going to (gasp!) welcome everyone.

For every special needs family who has ever been banned.

To every parent who has ever had to chase down a kid loaded up on sugar,corn syrup, red dye #5, and complete sensory meltdown in a restaurant because "Oh, come on. One bite of GFCFSFCF isn't going to kill the kid" turned into 300 spoonfuls from every person there, with shrieks of laughter coming from the dingbats that caused the scenario ringing in your ears in the first place.

To every parent who has ever been criticized because their child went surfing on Grandma's coffee table after being given candy, cake, and soda, even though the child was told to sit quietly in front of all the presents under the tree for 5 hours.

To every child who ever felt less than welcome, or scared to death because some morbidly obese stranger in red clothes yelled "Ho Ho HO!" in your face, then wanted you to snuggle him and tell what you want for Christmas, and snuggles freak you out and your whole body hurts from all the sensory stimulation. And the fat guy has bad breath.

You are welcome here. ALL of you. I don't care if you need to run around. I don't care if you need to spin. I don't care if all you will eat is green jello jigglers because that's the only thing in the Monster House that is familiar, and it soothes you. Honey, you do it.

 I don't care if you can only wear one certain brand of shirt and hate shoes. We have a washing machine ( a REALLY big one) and central heat. It will not bother anyone if you need deep pressure or brushing. It will not ruin things if changing a diaper has to happen. That's why God invented febreze spray. So monsters could scent their parents/caregivers while the process plays out.

You're ALL family to me. The real kind.. the kind that doesn't have rules that make everyone miserable. However, I do draw the line at naked snow angels. Frostbite. It's mean. ;)

Sending you all our love, and our deepest respect for everything you do for your children. And yes. I really am serious. You are welcome.
Images from the Google images.